Because there is no current standard of care for Duarte galactosemia (DG), it is up to families and
their healthcare providers to discuss and decide which approach is best for them. There is a broad
range of options. Examples include:
Regardless of diet, some healthcare providers might recommend doing follow-up lab tests to check
the baby’s galactose metabolite levels in blood or urine. If the baby has been eating a diet that
restricts galactose, and the family wants to consider relaxing the restriction, the baby’s healthcare
provider might recommend doing a “galactose challenge” sometime around the baby’s first birthday.
What is galactose and where does it come from?
Galactose is a natural sugar that is found at high levels in some foods, like milk, and at lower or very
low levels in other foods. Galactose is also made at low levels by the human body.
Foods high in galactose:
Galactose is present at very high levels in milk. This includes human breast milk, cow’s milk, and
other natural forms of milk. The galactose in milk comes from lactose, or milk sugar, which is broken
down by normal digestion to give glucose and galactose. Galactose is also found at high levels in
most dairy products, including soft cheeses, ice cream, yogurt, etc. Galactose is not present at high
levels in milk substitutes such as soy formula or soy milk, almond milk, or rice milk.
For more detailed nutritional information about high and low galactose-containing foods and their